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SPIRIT advance care planning intervention in early stage dementias: An NIH stage I behavioral intervention development trial.


ABSTRACT: People in the early stages of Alzheimer's disease and related dementias (ADRD) are encouraged to engage in advance care planning (ACP) while they are still competent to appoint a surrogate decision maker and meaningfully participate in ACP discussions with the surrogate. In this NIH Stage I behavioral intervention development trial, we will adapt and test an efficacious ACP intervention, SPIRIT (Sharing Patient's Illness Representation to Increase Trust), with people with mild dementia and their surrogates to promote open, honest discussions while such discussions about end-of-life care are possible. We will first adapt SPIRIT (in person) to target people with mild dementia and their surrogates through a process of modification-pretesting-refinement using stakeholders (persons with mild de

SUBMITTER: Song MK 

PROVIDER: S-EPMC6067971 | biostudies-literature | 2018 Aug

REPOSITORIES: biostudies-literature