Palliative care for patients with a substance use disorder and multiple problems: a study protocol.

ABSTRACT:

Background

The specific palliative care needs and problems of patients with a substance use disorder and multiple problems, and those of their proxies, are under recognized Besides, the organization of palliative care, including the division of health care professionals' responsibilities, is often unclear. Perspectives of patients and proxies are hardly known. We describe the outline of a study designed to explore how palliative care for patients with a substance use disorder is organized in the Netherlands and to explore problems and needs, as well as possible improvements from the healthcare professionals', patients' and proxies' perspective. The aim of this protocol paper is to provide insights in ways to conduct research with vulnerable research participants and to offer a deta

SUBMITTER: Ebenau A 

PROVIDER: S-EPMC6091086 | biostudies-literature | 2018 Aug

REPOSITORIES: biostudies-literature