'Adding another spinning plate to an already busy life'. Benefits and risks in patient partner-researcher relationships: a qualitative study of patient partners' experiences in a Canadian health research setting.

ABSTRACT: OBJECTIVE:To better understand, based on patient partners' experiences, benefits and risks in patient partner-researcher relationships in a health research setting. DESIGN:Qualitative interviews with thematic analysis informed by a relational ethics lens. SETTING:A multidisciplinary health research centre in Vancouver, Canada. This study was codeveloped by patient partners and researchers at the centre. PARTICIPANTS:22 people living with arthritis, with experience as members of a patient advisory board at the research centre from 1 month to 10 years. RESULTS:We identified three main themes: (1) Being Heard: Participants had experienced uncomfortable emotions (eg, feelings of insecurity) in their relationships with researchers. The discomfort, however, was minimised by the demonstration of

SUBMITTER: Leese J 

PROVIDER: S-EPMC6104752 | biostudies-literature | 2018 Aug

REPOSITORIES: biostudies-literature