Association between Oral Health-Related Quality of Life in People with Rare Diseases and Their Satisfaction with Dental Care in the Health System of the Federal Republic of Germany.

ABSTRACT:

Background

The aim of this study was to examine the current dental care situation in Germany from the perspective of those affected by a rare disease, especially concerning their satisfaction with the German dental health care system, and thus assess the relationship between their perspective and their oral health-related quality of life (OHRQoL).

Methods

A questionnaire regarding their experiences with the dental assistance and the health care system, such as the OHIP-14, was sent to the member associations of the organization of self-help groups for rare diseases ACHSE e.V. The correlation between OHIP-14 values and patient's perspective was statistically analyzed by the non-parametric Tau de Kendall test (p < 0.05).

Results

There was a statistically signific

SUBMITTER: Hanisch M 

PROVIDER: S-EPMC6121257 | biostudies-literature | 2018 Aug

REPOSITORIES: biostudies-literature