A Novel Stakeholder Engagement Approach for Patient-centered Outcomes Research.

ABSTRACT:

Introduction/objectives

The engagement of patients and other stakeholders is a critical element in the design of patient-centered outcomes research studies. However, methodology for scalable engagement in research management particularly activities such as operationalization of principles and setting of priorities is not well-developed. The objective of this study is to describe a novel approach for scalable stakeholder engagement in research aligned with the Patient-Centered Outcomes Research Institute (PCORI) engagement principles, which was evaluated in a national clinical data research network.

Materials and methods

Patient, patient advocate, clinician, and researcher stakeholders were recruited from clinical sites, as well as social media sites related to the 3 conditio

SUBMITTER: Kim KK 

PROVIDER: S-EPMC6143220 | biostudies-literature | 2018 Oct

REPOSITORIES: biostudies-literature