Online information and support needs of young people with cancer: a participatory action research study.

ABSTRACT:

Purpose

The Internet is a fully integrated part of young people's life and it is pivotal that online resources are developed to maximize the potential of the Internet to support those living with and beyond cancer. We sought to understand how young people with a cancer diagnosis use the Internet and to what extent information and support needs are met by existing online resources.

Patients and methods

This was a participatory action research study involving 21 young people participating in workshops and individual interviews. Participants aged 13-24 years were diagnosed with a range of cancers. Young people were on treatment or had completed treatment; some had experienced relapse. Workshops consisted of participatory methods including focus group discussions, interactive ac

SUBMITTER: Lea S 

PROVIDER: S-EPMC6167089 | biostudies-literature | 2018

REPOSITORIES: biostudies-literature