Children's family experiences: development of the PROMIS^® pediatric family relationships measures.

ABSTRACT:

Purpose

To describe the development of pediatric family relationships measures, with versions for child self-report (8-17 years) and parent-report for children 5-17 years old. Measures were created for integration into the Patient Reported Outcomes Measurement Information System (PROMIS^®).

Methods

Semi-structured interviews with 10 experts, 24 children, and 8 parents were conducted to elicit and clarify essential elements of family relationships. A systematic literature review was conducted to identify item concepts representative of each element. The concepts were transformed into items that were iteratively revised based on cognitive interviews (n = 43 children) and item translatability review. Psychometric studies involving 2846 children and 2262 parents were c

SUBMITTER: Bevans KB 

PROVIDER: S-EPMC6167927 | biostudies-literature | 2017 Nov

REPOSITORIES: biostudies-literature