Reciprocal relationships and the importance of feedback in patient and public involvement: A mixed methods study.

ABSTRACT:

Background

Reciprocal relationships between researchers and patient and public involvement (PPI) contributors can enable successful PPI in research. However, research and anecdotal evidence suggest that researchers do not commonly provide feedback to PPI contributors thus preventing them from knowing whether, how or where their contributions were useful to researchers and research overall.

Aims

The aim of this study was to explore the variation, types, importance of, and satisfaction with feedback given by researchers to PPI contributors in six PPI groups in England, and identify the barriers to the process of feedback.

Methods

An explanatory mixed methods sequential study design with a questionnaire survey followed by semi-structured interviews with researchers and P

SUBMITTER: Mathie E 

PROVIDER: S-EPMC6186542 | biostudies-literature | 2018 Oct

REPOSITORIES: biostudies-literature