Perceived Significance of Engagement in Research Prioritization Among Chronic Kidney Disease Patients, Caregivers, and Health Care Professionals: A Qualitative Study.

ABSTRACT:

Background

Patients and other stakeholders are increasingly engaging as partners in research, although how they perceive such experiences, particularly over the long term, is not well understood.

Objective

To characterize how participants from a nondialysis chronic kidney disease (CKD) research priority-setting project conducted 2 years previously perceived the significance of their involvement.

Design

Qualitative descriptive study with semi-structured, individual interviews.

Setting

Participants resided across Canada.

Participants

Eligible participants included stakeholders (ie, patients with nondialysis CKD, caregivers, health care professionals, and policy makers) who had taken part in a prior CKD research priority-setting project.

Measurements

SUBMITTER: Elliott MJ 

PROVIDER: S-EPMC6196622 | biostudies-literature | 2018

REPOSITORIES: biostudies-literature