Parental attitudes and willingness to donate children's biospecimens for congenital heart disease research: a cross-sectional study in Shanghai, China.

ABSTRACT:

Objectives

To assess attitudes and willingness of parents of children with congenital heart disease (CHD) regarding donating biospecimens for future CHD research, and to identify factors associated with biospecimen donation.

Design

Face-to-face cross-sectional survey data were analysed using logistic regression.

Setting

Cardiothoracic Surgery Inpatient Department, Shanghai Children's Medical Centre.

Participants

Parents of children attending the cardiothoracic surgery inpatient department at Shanghai Children's Medical Center, 1 March-31 December 2016.

Primary and secondary outcome measures

Willingness and motivation regarding donating children's biospecimens, and ethical and legal considerations concerning children's future willingness to donate.

Res

SUBMITTER: Gao H 

PROVIDER: S-EPMC6196814 | biostudies-literature | 2018 Oct

REPOSITORIES: biostudies-literature