Understanding the needs and experiences of people with young onset dementia: a qualitative study.

ABSTRACT:

Aim

Despite an estimated 40 000 people diagnosed with young onset dementia (YOD) in the UK, there is a general lack of awareness of the condition when compared with late onset dementia. The aim of this study was to explore the experiences and needs of people living with YOD (younger than 65 years) and gain an understanding of the issues that impact on them.

Setting

Participants' homes, support group premises or university rooms.

Participants

14 people with a diagnosis of YOD from a northern UK city.

Design

Semistructured, in-depth interviews were audio recorded, transcribed and analysed cross-sectionally following principles of interpretative phenomenological analysis.

Results

Four superordinate themes are reported on 'process of diagnosis', 'the impact

SUBMITTER: Rabanal LI 

PROVIDER: S-EPMC6196838 | biostudies-literature | 2018 Oct

REPOSITORIES: biostudies-literature