Detection of Dementia Cases in Two Swedish Health Registers: A Validation Study.

ABSTRACT:

Background

Population-based health registers are potential assets in epidemiological research; however, the quality of case ascertainment is crucial.

Objective

To compare the case ascertainment of dementia, from the National Patient Register (NPR) and the Cause of Death Register (CDR) with dementia diagnoses from six Swedish population based studies.

Methods

Sensitivity, specificity, and positive predictive value (PPV) of dementia identification in NPR and CDR were estimated by individual record linkage with six Swedish population based studies (n = 19,035). Time to detection in NPR was estimated using data on dementia incidence from longitudinal studies with more than two decades of follow-up.

Results

Barely half of the dementia cases were ever detected by NPR

SUBMITTER: Rizzuto D 

PROVIDER: S-EPMC6218116 | biostudies-literature | 2018

REPOSITORIES: biostudies-literature