Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan-European consultation.

ABSTRACT:

Background

People with dementia are often marginalized and excluded from influence, also in relation to dementia research. There is, however, a growing requirement for inclusion through Patient and Public Involvement (PPI), but there is still limited knowledge on how researchers can fully benefit from the involvement of people with dementia in the development and testing of psychosocial interventions. This paper describes the results of a pan-European consultation with people with dementia, synthesizing their views on outcomes of psychosocial interventions.

Objective

To involve people with dementia in establishing what are meaningful outcomes when participating in psychosocial interventions.

Setting and participants

Consultations took place at four divergent sites acr

SUBMITTER: Oksnebjerg L 

PROVIDER: S-EPMC6250864 | biostudies-literature | 2018 Dec

REPOSITORIES: biostudies-literature