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Dataset Information

Acceptability of Electronic Visits for Return of Research Results in the Mayo Clinic Biobank.


ABSTRACT:

Objective

To understand patient characteristics related to acceptability of returning individual research results via various modalities, focusing on electronic visits (e-visits).

Patients and methods

Twelve hundred participants from the Mayo Clinic Biobank were selected using a stratified random sampling approach based on sex, age, and education level. Mailed surveys ascertained return of results preferences for 2 disease vignettes (cystic fibrosis and hereditary breast cancer) and a pharmacogenomics vignette. The study was conducted from October 1, 2013, through March 31, 2014.

Results

In all, 685 patients (57%) responded, and 60% reported liking e-visits, although the option of receiving results in an office visit was liked most frequently. Multivariable logistic m

SUBMITTER: Olson JE 

PROVIDER: S-EPMC6257882 | biostudies-literature | 2018 Dec

REPOSITORIES: biostudies-literature