Thought leader perspectives on benefits and harms in precision medicine research.

ABSTRACT: Precision medicine research is underway to identify targeted approaches to improving health and preventing disease. However, such endeavors raise significant privacy and confidentiality concerns. The objective of this study was to elucidate the potential benefits and harms associated with precision medicine research through in-depth interviews with a diverse group of thought leaders, including primarily U.S.-based experts and scholars in the areas of ethics, genome research, health law, historically-disadvantaged populations, informatics, and participant-centric perspectives, as well as government officials and human subjects protections leaders. The results suggest the prospect of an array of individual and societal benefits, as well as physical, dignitary, group, economic, psychological,

SUBMITTER: Beskow LM 

PROVIDER: S-EPMC6258115 | biostudies-literature | 2018

REPOSITORIES: biostudies-literature