Information needs of physicians, care coordinators, and families to support care coordination of children and youth with special health care needs (CYSHCN).

ABSTRACT:

Objectives

Identify and describe information needs and associated goals of physicians, care coordinators, and families related to coordinating care for medically complex children and youth with special health care needs (CYSHCN).

Materials and methods

We conducted 19 in-depth interviews with physicians, care coordinators, and parents of CYSHCN following the Critical Decision Method technique. We analyzed the interviews for information needs posed as questions using a systematic content analysis approach and categorized the questions into information need goal types and subtypes.

Results

The Critical Decision Method interviews resulted in an average of 80 information needs per interview. We categorized them into 6 information need goal types: (1) situation understandin

SUBMITTER: Ranade-Kharkar P 

PROVIDER: S-EPMC6259667 | biostudies-literature | 2017 Sep

REPOSITORIES: biostudies-literature