Producing an evidence-based treatment information website in partnership with people affected by multiple sclerosis.

ABSTRACT:

Background and aims

In earlier work, we identified that people affected by multiple sclerosis (MS) can have difficulty finding online treatment information that is up to date, trustworthy, understandable, and applicable to personal circumstances, but does not provoke confusion or negative emotional consequences. The objective was to develop online consumer summaries of MS treatment evidence (derived from Cochrane Reviews) that respond to identified treatment information needs of people affected by MS.

Methods

A 2-phase mixed-methods project, conducted in partnership with consumers and an MS organisation. Phase 1 included review panels with consumers (Australians affected by MS) and health professionals to test paper-based treatment summaries before development, and pilot tes

SUBMITTER: Synnot AJ 

PROVIDER: S-EPMC6266475 | biostudies-literature | 2018 Mar

REPOSITORIES: biostudies-literature