Social media as a tool for assessing patient perspectives on quality of life in metastatic melanoma: a feasibility study.

ABSTRACT:

Purpose

Development of innovative drugs for melanoma is occurring rapidly. Incremental gains in overall survival amongst innovative products may be difficult to measure in clinical trials, and their use may be associated with increased toxicity profiles. Therefore, HTA agencies increasingly require information on HRQoL for the assessment of such drugs. This study explored the feasibility of social media to assess patient perspectives on HRQoL in melanoma, and whether current cancer- and melanoma-specific HRQoL questionnaires represent these perspectives.

Methods

A survey was distributed on the social media channels of Melanoma Patient Network Europe to assess melanoma patients' perspectives regarding HRQoL. Two researchers independently conducted content analysis to identify

SUBMITTER: Makady A 

PROVIDER: S-EPMC6267816 | biostudies-literature | 2018 Nov

REPOSITORIES: biostudies-literature