Determinants of the willingness to participate in biobanking among Malaysian stakeholders in the Klang Valley.

ABSTRACT:

Background

The demand in biobanking for the collection and maintenance of biological specimens and personal data from civilians to improve the prevention, diagnosis and treatment of diseases has increased notably. Despite the advancement, certain issues, specifically those related to privacy and data protection, have been critically discussed. The purposes of this study are to assess the willingness of stakeholders to participate in biobanking and to determine its predictors.

Methods

A survey of 469 respondents from various stakeholder groups in the Klang Valley region of Malaysia was carried out. Based on previous research, a multi-dimensional instrument measuring willingness to participate in biobanking, and its predictors, was constructed and validated. A single step Stru

SUBMITTER: Amin L 

PROVIDER: S-EPMC6282379 | biostudies-literature | 2018 Dec

REPOSITORIES: biostudies-literature