Delayed Diagnosis and a Lack of Information Associated With Dissatisfaction in Women With Polycystic Ovary Syndrome.

ABSTRACT:

Context

Polycystic ovary syndrome (PCOS) is a complex, chronic, and under-recognized disorder. Diagnosis experience may have lasting effects on well-being and self-management.

Objective

To investigate PCOS diagnosis experiences, information provided, and concerns about PCOS.

Design

Cross-sectional study using an online questionnaire.

Setting

Recruitment via support group web sites in 2015 to 2016.

Participants

There were 1385 women with a reported diagnosis of PCOS who were living in North America (53.0%), Europe (42.2%), or other world regions (4.9%); of these, 64.8% were 18 to 35 years of age.

Main outcome measures

Satisfaction with PCOS diagnosis experience, satisfaction with PCOS information received at the time of diagnosis, and current conce

SUBMITTER: Gibson-Helm M 

PROVIDER: S-EPMC6283441 | biostudies-literature | 2017 Feb

REPOSITORIES: biostudies-literature