Patient Perspectives on Health Data Privacy and Management: "Where Is My Data and Whose Is It?"

ABSTRACT: New technologies are increasingly evaluated for use within the clinical practice to monitor patients' medical and lifestyle data. This development could contribute to a more personalized approach to patient care and potentially improve health outcomes. To date, patient perspective on this development has mostly been neglected in the literature. Hence, this study aims to shed more light on the patient perspective on health data privacy and management. Focus groups with cardiac patients were done at the Elizabeth TweeSteden Ziekenhuis (ETZ) in the Netherlands as part of the DoCHANGE project. The focus groups were conducted using a semistructured protocol which was organized around three themes: privacy regulations, data storage, and transparency and privacy management. Five focus groups with

SUBMITTER: Wetzels M 

PROVIDER: S-EPMC6304538 | biostudies-literature | 2018

REPOSITORIES: biostudies-literature