Recommendations for services for people living with chronic breathlessness in advanced disease: Results of a transparent expert consultation.

ABSTRACT: Chronic breathlessness is highly distressing for people with advanced disease and their informal carers, yet health services for this group remain highly heterogeneous. We aimed to generate evidence-based stakeholder-endorsed recommendations for practice, policy and research concerning services for people with advanced disease and chronic breathlessness. We used transparent expert consultation, comprising modified nominal group technique during a stakeholder workshop, and an online consensus survey. Stakeholders, representing multiple specialities and professions, and patient/carers were invited to participate. Thirty-seven participants attended the stakeholder workshop and generated 34 separate recommendations, rated by 74 online survey respondents. Seven recommendations had strong agreem

SUBMITTER: Brighton LJ 

PROVIDER: S-EPMC6313262 | biostudies-literature | 2019 Jan-Dec

REPOSITORIES: biostudies-literature