Presymptomatic genetic testing for hereditary cancer in young adults: a survey of young adults and parents.

ABSTRACT: Presymptomatic testing for hereditary cancer syndromes should involve a considered choice. This may be particularly challenging when testing is undertaken in early adulthood. With the aim of exploring the psychosocial implications of presymptomatic testing for hereditary cancer in young adults and their parents, a cross-sectional survey was designed. Two questionnaires were developed (one for young adults who had considered presymptomatic testing, one for parents). Questionnaires were completed by 152 (65.2%) young adults and 42 (73.7%) parents. Data were analysed using descriptive statistics, inferential testing, and exploratory factor analysis and linear regression analysis. Young adults were told about their potential genetic risk at a mean age of 20 years; in most cases, information wa

SUBMITTER: Godino L 

PROVIDER: S-EPMC6336858 | biostudies-literature | 2019 Feb

REPOSITORIES: biostudies-literature