Supporting children and young people when making decisions about joining clinical trials: qualitative study to inform multimedia website development.

ABSTRACT:

Objectives

To understand stakeholders' views regarding the content and design of paediatric clinical trial multimedia websites. To describe how this knowledge informed the development of the multimedia websites.

Design

Qualitative study comprising two rounds of interviews or focus groups, with thematic analysis of interview transcripts.

Participants

Sixty-two people (21 children and young people with long-term health conditions, 24 parents and 17 professionals).

Setting

One UK children's hospital and one UK Young Persons' Advisory Group.

Results

When asked what was important in deciding whether to join a trial, children, young people and parents prioritised information about what participation would involve, what the trial was testing, potential benefits

SUBMITTER: Martin-Kerry JM 

PROVIDER: S-EPMC6340013 | biostudies-literature | 2019 Jan

REPOSITORIES: biostudies-literature