Living with dementia with Lewy bodies: an interpretative phenomenological analysis.

ABSTRACT:

Objective

To explore the subjective experience of living with dementia with Lewy bodies (DLB).

Design

A qualitative study of in-depth interviews using interpretative phenomenological analysis.

Setting

A memory clinic in Malmö, southern Sweden.

Participants

A purposive sample of five male participants with DLB between the ages of 78 and 88 years and disease duration of 1.5-7 years.

Results

Three themes were identified in relation to the participants' experiences of living with DLB: (1) disease impact, in terms of symptom experience and restricted participation and activities; (2) self-perception and coping strategies; (3) importance of others, such as healthcare, family and friends.

Conclusions

This study provides a broad insight into the first-han

SUBMITTER: Larsson V 

PROVIDER: S-EPMC6352787 | biostudies-literature | 2019 Jan

REPOSITORIES: biostudies-literature