Perceptions of Response Burden Associated with Completion of Patient-Reported Outcome Assessments in Oncology.

ABSTRACT: BACKGROUND:Patient response burden is often raised as a human subject concern in consideration of the length or complexity of patient-reported outcome (PRO) instruments used in oncology. OBJECTIVES:To quantify patient response burden and identify its predictive factors. METHODS:Data were collected presurgically during a prospective trial that used a comprehensive symptom and health-related quality-of-life (HRQOL) PRO assessment. A subset of patients also completed HRQOL interviews. Response burden was captured using an internally developed six-item instrument. Demographic and clinical characteristics as well as HRQOL scores were examined as potential predictors using hierarchical regression. Response burden was used to predict participant dropout at the first follow-up interval. RESULTS:A

SUBMITTER: Atkinson TM 

PROVIDER: S-EPMC6362460 | biostudies-literature | 2019 Feb

REPOSITORIES: biostudies-literature