The influence of perceived medical risks and psychosocial concerns on photoprotection behaviours among adults with xeroderma pigmentosum: a qualitative interview study in the UK.

ABSTRACT:

Background

A high level of photoprotection is required by people with xeroderma pigmentosum (XP), a rare skin disease, to reduce skin cancer and other risks. However poor photoprotection is thought to be widespread.

Purpose

This study examines the influences on photoprotection behaviours in adults with XP.

Design

Inductive qualitative study with semistructured interviews. Analysis employed a framework approach.

Setting

National sample recruited through a specialist XP centre in London.

Methods

Semistructured interviews at patients' homes. All transcripts were coded and themes charted for each participant. Comparisons within and across cases identified common themes and differing motivations and approaches to photoprotection. Credibility of interpretation

SUBMITTER: Morgan M 

PROVIDER: S-EPMC6377541 | biostudies-literature | 2019 Feb

REPOSITORIES: biostudies-literature