Patient-centred standards of care for adults with myositis.

ABSTRACT:

Background

The idiopathic inflammatory myopathies (IIM, myositis) are a heterogeneous group of chronic autoimmune disorders causing considerable physical and mental health impact. There is a lack of formalised guidance defining best practice for the management of myositis, contributing to inconsistent care provision and some patients feeling isolated and unsupported.To address these issues, we evaluated the clinical services available to adults with myositis in the UK. We then created patient-centred standards of care using a structured process involving patients, their relatives and caregivers, physicians and allied healthcare professionals.

Methods

After an initial focus group, the clinical services available to patients with myositis were evaluated using a patient-complet

SUBMITTER: Lilleker JB 

PROVIDER: S-EPMC6383593 | biostudies-literature | 2017

REPOSITORIES: biostudies-literature