Patient perspectives on use of electronic health records for research recruitment.

ABSTRACT:

Background

EHR phenotyping offers the ability to rapidly assemble a precisely defined cohort of patients prescreened for eligibility to participate in health-related research. Even so, stakeholders in the process must still contend with the practical and ethical challenges associated with research recruitment. Patient perspectives on these matters are particularly important given that the success of research recruitment depends on patients' willingness to participate.

Methods

We conducted 15 focus groups (n = 110 participants) in four counties in diverse regions of the southeastern US: Appalachia, the Mississippi Delta, and the Piedmont area of North Carolina. Based on a hypothetical study of a behavioral intervention for type 2 diabetes, we asked about the acceptability and

SUBMITTER: Beskow LM 

PROVIDER: S-EPMC6390331 | biostudies-literature | 2019 Feb

REPOSITORIES: biostudies-literature