Web-based personalised information and support for patients with a neuroendocrine tumour: randomised controlled trial.

ABSTRACT:

Background

Patients with a neuroendocrine tumour (NET) frequently have physical and psychosocial complaints. Aim of this study is to determine whether a web-based, personalised information and support system (WINS) reduces distress and/or improves patients' perception of and satisfaction with information received.

Methods

Patients with NET, stratified for those newly diagnosed (< 6 months, n = 28) and with a longer history of disease (n = 74), were randomised between standard care (n = 49) and intervention, consisting of access to WINS (n = 53). Primary outcome was change of distress and satisfaction with perceived information measured with the distress thermometer and problem list and the QoL questionnaire (QLQ)-INFO25. The intervention group also completed a questionnaire

SUBMITTER: de Hosson LD 

PROVIDER: S-EPMC6394034 | biostudies-literature | 2019 Feb

REPOSITORIES: biostudies-literature