Women's preferences for and experiences with prenatal genetic testing decision making: Sociodemographic disparities in preference-concordant decision making.

ABSTRACT:

Objective

To investigate women's preferred approach to prenatal genetic testing decision making and assess concordance between preference and experience.

Methods

We conducted a secondary analysis of data from two randomized trials conducted between 2007-2012. Survey items assessed participants' preferred approach to decision making and whether they experienced a preference-concordant decision process. Logistic regression estimated relationships between patient characteristics and these outcomes.

Results

56% of women preferred autonomous decision making, 39% preferred shared decision making, and 5% preferred a provider-driven approach. Only 57% experienced preference-concordant decision making. On bivariate analysis, black women, Spanish-speaking Latinas and women with

SUBMITTER: Molina F 

PROVIDER: S-EPMC6421100 | biostudies-literature | 2019 Mar

REPOSITORIES: biostudies-literature