Multiple challenges for people after transitioning to secondary progressive multiple sclerosis: a qualitative study.

ABSTRACT:

Objectives

Transitioning to secondary progressive multiple sclerosis (SPMS) is demanding for both patients and healthcare professionals. The particular challenges and the ways patients cope are poorly understood. The present study examines what challenges people face when diagnosed with SPMS by exploring experiences of people who have transitioned recently (up to 5 years).

Design

Semistructured qualitative interviews at two time points a year apart. Interviews were analysed using inductive thematic analysis.

Setting

UK.

Participants

We interviewed 21 people at baseline and 17 participated in the follow-up interviews.

Results

The majority of participants reported expecting to transition to SPMS, and the diagnosis did not make much difference to them. Part

SUBMITTER: Bogosian A 

PROVIDER: S-EPMC6429969 | biostudies-literature | 2019 Mar

REPOSITORIES: biostudies-literature