Research priorities in single-ventricle heart conditions: a United Kingdom national study.

ABSTRACT:

Objective

To bring together stakeholders in the United Kingdom to establish national priorities for research in single-ventricle heart conditions.

Methods

This study comprised two surveys and a workshop. The initial public online survey asked respondents up to three questions they would like answered for research. Responses were classified as unanswered, already answered, or unable to be answered by scientific research. In the follow-up survey, unanswered questions were divided into categories and respondents were asked to rank categories and questions by priority. A stakeholder workshop attended by patients, parents, healthcare professionals, researchers, and charities was held to determine the final list of research priorities.

Results

A total of 128 respondents pos

SUBMITTER: Drury NE 

PROVIDER: S-EPMC6435189 | biostudies-literature | 2019 Mar

REPOSITORIES: biostudies-literature