Survivorship care plan experiences among childhood acute lymphoblastic leukemia patients and their families.

ABSTRACT:

Background

As survivorship care plan (SCP) use among childhood cancer survivors and their families has not been extensively researched, we report on their experiences with receiving an SCP after the completion of therapy.

Methods

Eligible patients had acute lymphoblastic leukemia, completed therapy, and had no evidence of disease at enrollment. Patients aged 7 or older (N = 13) and at least one parent (N = 23 for 20 total patients) were surveyed and completed assessments at enrollment (Time 1, T1), SCP delivery (Time 2, T2), and follow-up (Time 3, T3) (retention 90.9%). Surveys assessed the delivery process and SCP format. McNemar tests were used to assess change from T2-T3.

Results

Satisfaction with the SCP was generally high among parents. At T1 the majority of pare

SUBMITTER: Pannier ST 

PROVIDER: S-EPMC6461822 | biostudies-literature | 2019 Apr

REPOSITORIES: biostudies-literature