Public Involvement in Global Genomics Research: A Scoping Review.

ABSTRACT: Public involvement in research occurs when the public, patients, or research participants are actively contributing to the research process. Public involvement has been acknowledged as a key priority for prominent human genomics research initiatives in many different countries. However, to date, there has been no detailed analysis or review of the features, methods, and impacts of public involvement occurring in human genomics research projects worldwide. Here, we review the reported public involvement in 96 human genomics projects (initiatives), based on a database of initiatives hosted by the Global Alliance for Genomics and Health, according to information reported on public domain websites. To conduct the scoping review, we applied a structured categorization of criteria to all informa

SUBMITTER: Nunn JS 

PROVIDER: S-EPMC6467093 | biostudies-literature | 2019

REPOSITORIES: biostudies-literature