Young adults' attitudes to sharing whole-genome sequencing information: a university-based survey.

ABSTRACT:

Background

Genomic services are increasingly accessible to young adults starting their independent lives with responsibility for their self-care, yet their attitudes to sharing genomic information remain under-researched. This study explored attitudes of university-based 18-25 year-olds towards sharing personal whole-genome sequencing (WGS) information with relatives.

Methods

We surveyed 112 young adults. Hypotheses were tested regarding the relationships between their preferences for sharing personal WGS information with relatives and factors including their gender, previous genetics-specific education, general educational attainment level and current study in a science, technology, engineering, maths or medicine (STEMM) field.

Results

Most participants were positive

SUBMITTER: Barnard P 

PROVIDER: S-EPMC6469029 | biostudies-literature | 2019 Apr

REPOSITORIES: biostudies-literature