Palliative care for patients with motor neurone disease and their bereaved carers: a qualitative study.

ABSTRACT:

Background

Internationally, it is widely accepted that holistic care is as an integral part of the care for people with motor neurone disease (MND), and their informal carers. However the optimal role of generalist and specialist palliative care, and how it integrates with specialist neurology services, is not fully established. Using a qualitative approach we sought to examine end of life care for people with MND in Northern Ireland, and the role of specialist and generalist palliative care.

Methods

Qualitative study involving a convenience sample of 13 bereaved carers recruited using the Northern Ireland MND Register. Data collection consisted of semi-structured interviews with the bereaved carers of patients who had died 3-24 months previously with a diagnosis of MND. Dat

SUBMITTER: Mc Veigh C 

PROVIDER: S-EPMC6486679 | biostudies-literature | 2019 Apr

REPOSITORIES: biostudies-literature