Locked-in syndrome in Sweden, an explorative study of persons who underwent rehabilitation: a cohort study.

ABSTRACT:

Objective

Locked-in syndrome (LiS) is a rare condition, characterised by a complete paresis except for vertical eye movements and blinking with cognitive functions intact, commonly caused by ischaemia in the ventral pons. Previous studies have indicated that persons with LiS can live on for many years and have a good quality of life (QoL). To our knowledge, LiS has never been studied in Sweden. The aim was to explore LiS in Sweden; describing population characteristics, living situation, mortality/cause of death and health-related QoL/impact on participation.

Design

Explorative, nationwide study with two parts (quantitative and qualitative). Persons registered in the national quality register WebRehab during 2007-2014 were eligible.

Participants

Ten persons were ident

SUBMITTER: Svernling K 

PROVIDER: S-EPMC6500099 | biostudies-literature | 2019 Apr

REPOSITORIES: biostudies-literature