Description of the BRIGHTLIGHT cohort: the evaluation of teenage and young adult cancer services in England.

ABSTRACT:

Objective

International recognition of the unique needs of young people with cancer is growing. Many countries have developed specialist age-appropriate cancer services believing them to be of value. In England, 13 specialist principal treatment centres (PTCs) deliver cancer care to young people. Despite this expansion of specialist care, systematic investigation of associated outcomes and costs has, to date, been lacking. The aim of this paper is to describe recruitment and baseline characteristics of the BRIGHTLIGHT cohort and the development of the bespoke measures of levels of care and disease severity, which will inform the evaluation of cancer services in England.

Design

Prospective, longitudinal, observational study.

Setting

Ninety-seven National Health Service

SUBMITTER: Taylor RM 

PROVIDER: S-EPMC6500338 | biostudies-literature | 2019 Apr

REPOSITORIES: biostudies-literature