Long-term Sequelae of Pediatric Neurocritical Care: The Parent Perspective.

ABSTRACT: Critical neurologic disease and injury affect thousands of children annually with survivors suffering high rates of chronic morbidities related directly to the illness and to critical care hospitalization. Postintensive care syndrome (PICS) in patients and families encompasses a variety of morbidities including physical, cognitive, emotional, and psychological impairments following critical care. We conducted a focus group study with parents of children surviving pediatric neurocritical care (PNCC) for traumatic brain injury, stroke, meningitis, or encephalitis to determine outcomes important to patients and families, identify barriers to care, and identify potential interventions to improve outcomes. Sixteen parents participated in four groups across Oregon. Three global themes were ident

SUBMITTER: Williams CN 

PROVIDER: S-EPMC6506677 | biostudies-literature | 2018 Dec

REPOSITORIES: biostudies-literature