Making the future together: Shaping autism research through meaningful participation.

ABSTRACT: Participatory research methods connect researchers with relevant communities to achieve shared goals. These methods can deliver results that are relevant to people's lives and thus likely to have a positive impact. In the context of a large and growing body of autism research, with continued poor implementation, and some evidence of community dissatisfaction, there is a powerful case for participatory autism research. In order to develop a framework for such collaborative working, a UK seminar series was organised and co-produced by autistic and non-autistic people with academic, practitioner and lived expertise. This article reports on the outcomes from the series, identifying five topics relevant to building a community of practice in participatory research: Respect, Authenticity, Assump

SUBMITTER: Fletcher-Watson S 

PROVIDER: S-EPMC6512245 | biostudies-literature | 2019 May

REPOSITORIES: biostudies-literature