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Dataset Information

Psychological adaptation to diagnostic genomic sequencing results: The role of hope fulfillment.


ABSTRACT:

Objective

Psychological adaptation is an important but understudied outcome among patients who undergo DNA evaluation to identify a cause of an unexplained health condition. This longitudinal study examines the relationship between the degree to which participants' hopes for diagnostic genomic sequencing were fulfilled and their psychological adaptation to their sequencing results over time.

Method

Secondary analyses were conducted on data from a subset of adult participants from the North Carolina Clinical Genomic Evaluation by Next-Generation Exome Sequencing study with physical health conditions of suspected genetic etiology (such as neurological disorders or cancer; n = 192). Hope fulfillment and type of hope (hopes related to personal-family health implications vs. hopi

SUBMITTER: Griesemer I 

PROVIDER: S-EPMC6522310 | biostudies-literature | 2019 Jun

REPOSITORIES: biostudies-literature