Parental experiences of end of life care decision-making for children with life-limiting conditions in the paediatric intensive care unit: a qualitative interview study.

ABSTRACT:

Objectives

To provide an in-depth insight into the experience and perceptions of bereaved parents who have experienced end of life care decision-making for children with life-limiting or life-threatening conditions in the paediatric intensive care unit (PICU).

Design

An in-depth qualitative interview study with a sample of parents of children with life-limiting or life-threatening conditions who had died in PICU within the previous 12 months. A thematic analysis was conducted on the interview transcripts.

Setting

A PICU in a large National Health Service (NHS) tertiary children's hospital in the West Midlands, UK.

Participants

17 parents of 11 children who had died in the PICU.

Results

Five interconnected themes were identified related to end of life car

SUBMITTER: Mitchell S 

PROVIDER: S-EPMC6528052 | biostudies-literature | 2019 May

REPOSITORIES: biostudies-literature