Implementation of an educational intervention to optimize self-management and transition readiness in young adults with sickle cell disease.

ABSTRACT:

Background

The transition from the pediatric setting to adult care is a well-described period of morbidity and mortality for persons with sickle cell disease (SCD). We sought to measure the feasibility and effectiveness of providing skill-based educational handouts on improving self-management and transition readiness in adolescents with SCD.

Methods

This was a single-center study in which participants completed a self-assessment, the Adolescent Autonomy Checklist (AAC), to assess transition readiness and self-management skills at baseline. After results were reviewed by the study coordinator, participants were provided with skill-based handouts on noted areas of deficit. The AAC was subsequently completed at a follow-up visit. All data were stored electronically and transfe

SUBMITTER: Calhoun CL 

PROVIDER: S-EPMC6529244 | biostudies-literature | 2019 Jul

REPOSITORIES: biostudies-literature