Coming from two different worlds-A qualitative, exploratory study of the collaboration between patient representatives and researchers.

ABSTRACT:

Background

Interest in user involvement in research has increased and user involvement is increasingly seen as a prerequisite. Still, challenges in the collaboration process have been documented from both researchers' and users' perspective.

Objective

By bringing together researchers and patient representatives, this study explores and describes both parties' experiences with user involvement in research as they appear through interactions in a focus group.

Design

We apply a qualitative design using positioning theory as a theoretical framework.

Setting and participants

Researchers and patient representatives were mixed within 2 focus groups. Positioning theory was used to guide the analysis.

Findings

The discussion evolved around knowledge, equity and p

SUBMITTER: Stuhlfauth S 

PROVIDER: S-EPMC6543145 | biostudies-literature | 2019 Jun

REPOSITORIES: biostudies-literature