Patient stakeholder engagement in research: A narrative review to describe foundational principles and best practice activities.

ABSTRACT:

Background

Health research is evolving to include patient stakeholders (patients, families and caregivers) as active members of research teams. Frameworks describing the conceptual foundations underlying this engagement and strategies detailing best practice activities to facilitate engagement have been published to guide these efforts.

Objective

The aims of this narrative review are to identify, quantify and summarize (a) the conceptual foundational principles of patient stakeholder engagement in research and (b) best practice activities to support these efforts. SEARCH STRATEGY, INCLUSION CRITERIA, DATA EXTRACTION AND SYNTHESIS: We accessed a publicly available repository of systematically identified literature related to patient engagement in research. Two reviewers indep

SUBMITTER: Harrison JD 

PROVIDER: S-EPMC6543160 | biostudies-literature | 2019 Jun

REPOSITORIES: biostudies-literature