Development of a patient reported outcome measures for measuring the impact of visual impairment following stroke.

ABSTRACT:

Background

Among the available patient-reported outcome measures (PROMs) there is an absence of a PROM with a specific focus on the impact of the wide variety of visual impairments following stroke. Our aim was to develop a patient reported quality of life outcome measure for stroke survivors with visual impairment.

Methods

Potential items were sourced from a combination of existing PROMs from a systematic review and qualitative in-depth interviews, duplicates were removed and items shortlisted. The initial pilot instrument was created following a ranking exercise of these potential items and consultation with stroke survivors. Version 1 was piloted with 37 stroke survivors at acute and chronic stages. Version 2 was piloted with 243 stroke survivors with visual impairment at

SUBMITTER: Hepworth LR 

PROVIDER: S-EPMC6544926 | biostudies-literature | 2019 May

REPOSITORIES: biostudies-literature