Transitioning from pediatric to adult health care with familial hypercholesterolemia: Listening to young adult and parent voices.

ABSTRACT:

Background

Young adults with familial hypercholesterolemia (FH) are at a critical period for establishing behaviors to promote future cardiovascular health.

Objective

To examine challenges transitioning to adult care for young adults with FH and parents of FH-affected young adults in the context of 2 developmental tasks, transitioning from childhood to early adulthood and assuming responsibility for self-management of a chronic disorder.

Methods

Semistructured, qualitative interviews were conducted with 12 young adults with FH and 12 parents of affected young adults from a pediatric subspecialty preventive cardiology program in a northeastern academic medical center. Analyses were conducted using a modified grounded theory framework.

Results

Respondents identif

SUBMITTER: Sliwinski SK 

PROVIDER: S-EPMC6547361 | biostudies-literature | 2017 Jan - Feb

REPOSITORIES: biostudies-literature