Co-design of a patient experience survey for arthritis central intake: an example of meaningful patient engagement in healthcare design.

ABSTRACT:

Background

To describe the process of patient engagement to co-design a patient experience survey for people with arthritis referred to central intake.

Methods

We used a participatory design to engage with patients to co-design a patient experience survey that comprised three connected phases: 1) Identifying the needs of patients with arthritis, 2) Developing a set of key performance indicators, and 3) Determining the survey items for the patient experience survey.

Results

Patient recommendations for high quality healthcare care means support to manage arthritis, to live a meaningful life by providing the right knowledge, professional support, and professional relationship. The concept of integrated care was a core requirement from the patients' perspective for the de

SUBMITTER: Carr ECJ 

PROVIDER: S-EPMC6549374 | biostudies-literature | 2019 Jun

REPOSITORIES: biostudies-literature