Oral health related quality of life of children and adolescents affected by rare orofacial diseases: a questionnaire-based cohort study.

ABSTRACT:

Background

Rare diseases affecting the teeth, the oral cavity and the face are numerous, each of them present specific characteristics, and is a life-long condition. The aim of the study was to assess the association between Oral health-related quality of life (OHRQoL), and demographic characteristics, clinical and dental factors, and psycho-social characteristics to investigate that oral symptoms are not the main factors underlying a decrease in OHRQoL.

Material and methods

We conducted a national cohort study in French centres for rare diseases (RD) specialized in orofacial diseases. The inclusion criteria were: to have received care in RD centres over the last 5 years (2012-2017) and to have been between 6 and 17 years of age on September 1, 2017. Patients were invited to

SUBMITTER: Friedlander L 

PROVIDER: S-EPMC6549379 | biostudies-literature | 2019 Jun

REPOSITORIES: biostudies-literature